Monthly Archives: April 2016

“In Due Time”

Matthew_and_Peg_Clinic_0426161Best Clinic Visit Ever!

Well, first of all I apologize for such a long delay since the last update.

Matthew’s journey through the first cycle of Immunotherapy started out smooth as silk. However, after a few days he started experiencing the nerve pain they had mentioned would happen. He actually seems to have a pretty high pain threshold but even with that he needed to take advantage of the on demand pain medication periodically to keep things at a manageable level. Then a few more expected symptoms came along. Everything seemed to happen a little later than the doctors expected, but it came along none-the-less. We thank God that Matthew fared well. He did develop a fever from one of the meds that took a few days to go away but once it was gone it was GONE!

Then the rains came!!!!!

Most of you may have been aware that Houston got its share of rain not that long ago. A storm front just kept the rain coming until much of the Houston area was under water or the threat of being under water from flooding. Sadly this kept me from being able to get to the medical center to pick Matthew and Mom up and also affected the ability of the pharmacy to make home delivery of a necessary post chemo medicine. Combine all these factors and Matthew ended up with a few extra days stay in the hospital. A Saturday release turned into a Tuesday release. Matthew wasn’t overly happy with the extra time but he dealt with it like a champ.

Then came the drive home. Wow! He was so excited and his “going home” music mix seemed extra special this time.
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The time at home has been great. Matthew has been able to get more homebound schooling done and he even got to invite sweet Emma out to his uncles house as we all gathered to visit his Uncle Craig who was in town on business.

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Moo_and_Craig_at_Buzzes_042516

And in due time we had to have another clinic visit. As you can see from the picture at the top (with his Physicians Assistant) all went very well. His hemoglobin numbers were higher than they have been since we started this “Adventure”. And the P.A. was smiling when she saw his platelet number since this treatment usually has an effect on those and his have actually gone up since treatment ended and not down. We couldn’t be happier and give God all the glory for these great numbers!

Thank you all so much for your prayers, love and support.

 

“The Adventure Continues …”

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Immunotherapy Begins

We go in for the 1st cycle of Immunotherapy today. It lasts 5 days.

The blessing is that there shouldn’t be any nausia this time!

However, during the treatment could cause some nerve pain and possibly diarrhea. They will thankfully be keeping Matthew on pain meds and they have preemptively had him on something for the possible diarrhea.

When Matthew heard what this treatment entailed he responded with his usual “down for the adventure” attitude. We thank God for the faith and strength he has given our remarkable young man.  And we pray for God to make this part of the “Adventure” as smooth and effective as possible. May the Immunotherapy target only the cells that need to be ellminated and leave all the healthy cells and tissue alone! May He bless Matthew with little or no pain and no other side effects!

The great news!!! … as soon as treatment is over whatever pain and diarrhea will go away immediately.

2 cycles of this, more MIBG scanning, and if the immunotherapy is effective they can decide to do up to 4 more cycles, if needed, before considering the radiation treatment in Ft Worth.

Have a blessed day in the Lord!

And … Happy Eastertide! He is Risen, Indeed. Alleluia!!!

 

“A Picture Is Worth … Priceless!”

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Happy Easter. He is Risen Indeed. Alleluia!

Many people have been asking how Matthew is doing since we came home Sunday. I have figured out that the words I might use to describe how he is doing pale in comparison to showing a picture. This picture is when Emma’s family invited us all over for a wonderful Easter dinner (awesome people – lots of fun, food & games) the day we came home!! That says it all. It says exactly how he is doing!

Since then Matthew’s gone places with buddies, fished at our lake with friends,  gone to the movies with Dad & is currently cooking dinner with Emma.

Thank you all for the continued prayers & support!

May the Lord bless you and keep you!!!