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I.C.E., I.C.E. Matthew!

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What was going to be the final (6th) cycle has turned into the new 1st cycle (of 2). The doctor team has decided to be more aggressive based on results so far. The new combo is called I.C.E.

On the way into clinic Matthew said he was tempted to play that song, “Ice, Ice, Baby!” just for fun 🙂

We are thankfull that we have learned to pre-medicate for nausia so hopefully that will keep this new chemo combo at bay while it kicks Neuroblastoma’s butt!

As always we pray to God for a miracle and put our trust in His good and perfect will !!!

Deductibles and co-pays kinda shock us sometimes, however, your gifts and support have been amazing and humbling and have made the financial burden easier to bear. Together we will be on the other side of this adventure soon.

We ask for your continued prayers and will keep you posted as the adventure continues.

May the Lord bless you and keep you!!!

“MOST HANDSOME” Klein Oak Class of 2016!

MCH_Senior_02_SmallThere are moments in the midst of Matthew’s “Adventure” that leave us very thankful to God, proud as parents and humbled before an amazing community of love and support.

Today, after waking up very early to go in for an echocardiogram and an EKG, Matthew found out that his senior class voted him “most handsome”!!!!! His girlfriend, sweet Emma, even overheard some girls at school asking “are you voting for Matt or so&so?” And the others said, “Matt Hogan!! He’s much hotter!”

Matthew, of course, let’s these kind of things bring a smile to his face, as they should … but then he let’s them roll off. (proud parents)

We are looking forward to a good blood report on Friday and then a weekend filled with lots of sweet Emma time, fun and good food!

We always remember you all in our prayers. And we are so thankful for all the continued prayers and support, especially as the plan of treatment to cure changes so Matthew will, by the grace of God, “Beat Neuroblastoma Like a Drum!”

May the Lord bless you and keep you!!!

“Status-quo”

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[Today’s picture is of Matthew and sweet Emma when we stopped for dinner last Friday night after clinic.]

It is Tuesday, January 12th, and we are preparing for more blood products (blood and platelets). As always we ask the Lord to bless them so that they do what they need to do and so that Matthew will receive them well with no reactions. We thank God for all the blessings He has graciously given through this “adventure”!!!  Continue reading

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“Happy New Year!”

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New Years Eve in the hospital wasn’t the worst thing … because at midnight Matthew got out of bed and started dancing with IVy (his IV pole). Then mom joined in and I was able to grab a quick pic. After toasting in the New Year with some Sparkling Cider Matthew asked me to sit with him so Mom could take a picture of us too.

Cycle 5 has gone so well. Especially since cycle 3, the same stuff, was the roughest yet.

Matthew heads off any potential nausea by taking his breakthrough meds and as a result has had quite the appetite this time around. He has actually gained weight!

Next up will be some time at home followed by a clinic next week and then some more scans to see just how little of the cancer is left.

Please pray with us that the 5 cycles have done what they are intended to do, God willing, and that there will be little or no signs of the cancer when the results of the scans come back.

Matthew is up and about, eating and playing games with Mom.

Thank you all for your continued prayers and support.

All the ongoing donations are leaving us speechless and they are truly a blessing. We don’t know what expenses the New Year will bring but we appreciate all of you for showing such love and care for Matthew as he progresses on his adventure.

May the Lord bless you and keep you!!!

Crossword Silliness and the End of Cycle 2

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UPDATE: 10.24.15
Well, after two days of adjusting through some morning nausia that wanted to hang out until 1pm or so each day, today Matthew was able to start eating earlier without any additional meds. Still taking it slow, deciding what sounds good.

One more night of cycle 2 Chemo and then … home!!!

Matthew is so excited for that. His own bed and, hopefully, the ANC numbers that will allow some friends to come visit. Some could come visit one way or the other but good numbers really help this be comfortable.

Matthew is currently doing crossword puzzles with Mom and they are have way too much fun wink emoticon laughing at some of their own guesses when correct answers are more elusive.

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We are so thankful that things are settling down. We pray for good numbers to go home with. We are going to give Matthew his second NeuLasta Sunday night, it will be the first one at home. But that gets us home earlier smile emoticon

Thanks for all your continued prayers, love, thoughts, and support.

May the Lord bless you and keep you!!!

UPDATE 10.01.15

Chemo began today, Oct. 1, at 12am

Matthew slept through the first infusion of Chemo and woke feeling good.

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